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Trevor was born on October 30, 1994 at 3 o'clock in the morning, in Phoenix Arizona. We had picked up my parents up from the airport (saturday) and the doctors were going to induce me on Monday. When we got home, I went to the bathroom and my water broke. My pregnancy had been very normal with no complications. I hadn't even had morning sickness, my only concern was lack of fetal movement. The doctors told me not to worry, "Some babies are just less active." I was in labor for 13 hours before they finally did a C-Section. The C-Section was done due to failure to progress and fetal distress. When Trevor was born, he coded and the doctors had to resucitate him. The onlything that saved his life was the anesthesiologist was able to work on him since I had an epidural. Trevor was flown by Air Vac immediately to Children's Hospital, where he remained for 2 months. He weighed in at 8lbs 3oz. He ws the biggest baby in the Intensive Care Nursery. Trevor was on and off the vent for two weeks and continuously on oxygen. In December, he had his first surgery, it included a trach tube, G-tube, fundoplication, and a muscle biopsy. He finally came home on January 3rd 1995. He was home with ozygen, apnea monitor and suction equipment. He come home with limited nursing and anxious parents. In February of 1995 Trevor stopped breathing in the middle of the night. I revived him and called the doctor in the morning. I brought him in that morning, on the way, he stopped breathing on the freeway. When I finally got to the doctor's office she sent him immediately to Children's Hospital. He was there for one month while there he was diagnoses with RSV (a respiratory virus). He was sent home on C-Pap to help keep his lungs open. Trevor finally received more nursing and I continued to fight with the insurance company. Trevor went in for his second surgery (outpatient) this time he had his ear tubes placed, circumcision, G-button placement and uroscopy. He was strong enough to get off C-Pap not long after. In July of 1995 we moved to Livermore to be near family. He was fine until wintertime when he spent three months in ICU. He spent another Christmas in the hospital and finally came home on a ventilator. Trevor has remained at home and out of the hospital since then. He has benefitted with the vent greatly. He has improved stamina and gets bigger and stronger every day. We receive 16 hours of nursing daily which helps us get through the night. Trevor is off the vent as much as possible (about 4 hours a day) and loves to play with his cat China. Trevor is a happy kid and loves music, books and puzzles. He is cognitively a three year old and should be treated as such. |
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