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This is Kyle’s story, born Oct. 1, 1996. Limp as a ragdoll, with no cough reflex, they put him on nasal cpap immediately. Heart rate dips and fast heart rates were daily occurences, along with episodes of apnea. He was very scrawny looking with baggy arms, and no muscle in his baggy buttocks.. His back was kyphotic, or abnormally curved in the upper area. He also had bruising and swelling evident there as well. His platelet count was unusually low for a newborn and we continued to monitor it for the next few weeks as it returned to normal. We requested several times for an x-ray on his spine but it was never done. We wanted to have Kyle seen by our family chiropractor ASAP. We have taken him regularly ever since, with great improvement in the beginning, and continued visits to maintain good alignment. His comment on scoliosis is that if Kyle gets adjusted regularly, then he is at significantly lower risk of it. Kyle has had 2 episodes of jaundice, the first one the worst, with a bilirubin as high as 8.0 and with liver enzyme elevation. Ultrasound reveals an enlarged liver. We are trying to alleviate his itching and control the bilirubin and enzymes with a medication called actigall. So far, his incessant itching has subsided, to his mother’s great relief! Blood tests reveal little change from the mild elevations of bili and enzymes. However, we will check again in a couple of months. We think we notice a pattern of slightly elevated bili every time he has a viral illness. For a year now he has been using a negative pressure chamber for RMR instead of nasal Cpap. We started out with a plastic box, which we cut a hole in for his head to come through and put a piece of raincoat on it to help seal it. We now have a commercially made chamber which looks a little like a miniature submarine. The important thing is of course how well it works for him. No pneumonia this year, for starters! You can hear the difference in his lungs after just 30 minutes in it. We can’t say enough how well this machine works for him. He can sit independently now and is starting to use his legs to move across the floor while he is in the walker. He has a wonderful personality and learns quickly. What a joy he is to us!!!! Click on each picture to view a full sized version.
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