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Myopathy Resource Group, Inc . Information on this website may be redistributed and copied
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published by the Myotubular Myopathy Resource Group, Inc. solely as a service for
interested parties. This is a lay interpretation and should not be considered definitive
by any means. This discussion draws largely from the sources cited as well as the personal
observations of the authors. We are neither doctors nor experts nor do we pretend to
be. Any decisions on medical treatments, interventions, courses of action, etc. should
be made by the appropriate family members in consultation with the available literature
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