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TES

(the following graciously provided by the Shapiro family)

To Whom It May Concern,

Re: Jason Shapiro

Jason has been referrred by Dr. Traeger for a home-based neuromuscular stimulator program. We recommend the One2One stimulator, manufactured in Marlborough, MA, by Stimtech Products Inc. It has been specifically engineered to provide safe home use. In addition to an automatic shut-off that triggers when electrodes loosen, it contains a compliance meter to monitor home use. The product is covered under FDA 510(k) K899751.

Jason is a 2 year old child with Myotubular Myopathy which significantly limits his function. Neuromuscular electrical stimulation is an accepted modality for the treatment of disuse muscle atrophy. Such atrophy contributes to his ongoing disability of poor respiratory capacity (he is vent dependent), decreased muscle endurance and significantly reduced motor skill. level.

In Jason’s case, we expect an improvement in his respiratory function with a concurrent reduction in the frequency of hospitalizations. In addition, improved abdominal and thoracic control will aid in oro-motor function for speech and feeding. These changes, as well as changes in functional mobility and skill level should be evident within three to six months of beginning the program. His progress will be evaluated after three to six months by means of reports from his treating physician, therapists, and a repeat video documentation of his skills.

If there is no beneficial effect on this review, the electrical stimulation will be discontinued and an appropriate partial refund provided for the neuromuscular stimulator.

If there is a beneficial effect, suggestions for continuing treatment will be provided and a repeat assessment will be scheduled after six to twelve months of home based treatment. We expect that adding home-based neuromuscular stimulation to Jason’s regular therapy program will improve functional outcome over a short time period. Again, a reduction in hospitalizations and a decrease in the use of mechanical ventilation are expected.

2 January 2000

 

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Copyright © 2000 by the Myotubular Myopathy Resource Group, Inc . Information on this website may be redistributed and copied freely provided that proper attribution is given.  This page was last revised on 23 Dec 2000. The Myotubular Myopathy Resource Group, Inc. is a not-for-profit organization under Section 503(c) of the IRS Code. These World Wide Web pages are published by the Myotubular Myopathy Resource Group, Inc. solely as a service for interested parties. This is a lay interpretation and should not be considered definitive by any means. This discussion draws largely from the sources cited as well as the personal observations of the authors. We are neither doctors nor experts nor do we pretend to be. Any decisions on medical treatments, interventions, courses of action, etc. should be made by the appropriate family members in consultation with the available literature and qualified medical professionals. Good sense should always prevail. The authors, contributors and the Myotubular Myopathy Resource Group, Inc. assumes no responsibility for the use of the information, observations or opinions presented herein.