There are several ways to contact us or others. Please select the
method that works best for you.
While the Scoggin family still runs the MTMRG from Texas….. Help with
keeping this website updated, answering emails, and other current projects (October
2006 and beyond) on myotubular myopathy (MTM) and other forms of centronuclear
myopathy (CNM) is provided by:
The Foye Family, 38 Buckingham Circle, Pine Brook, New Jersey, USA,
07058-9506.
The Foye family’s home phone number: 973-882-1996.
E-mail: myopathy@optonline.net
or you can just click
on this link to send an e-mail to us.
We actively encourage other affected families to contact us with any questions
about MTM/CNM, or to share your story, or to share ideas about ways to help
affected individuals and families. Only by families working together can we
help make a difference for people with myopathy worldwide. Or just email us to
say "Hi!" We would LOVE to hear from you! Just click
on this link to send an e-mail to us.
No matter where in the world you are reading this from, contacting us
right now is just a click away.
Additional e-mail, mail, and telephone contact information
A Note about E-Mail
(Delays)
Sometimes we get a little behind in our info@mtmrg.org
email. This includes data sent on the site survey and the family
registration page. We apologize if this causes any problems. (Please
use the
Foye email for a quicker response, or to resend any previous email.) If you
need to contact the Scoggin family quickly and need a quick reply, the best
thing to do is to CALL the Scoggin family at 409/945-8569. If possible we
prefer calls before 9pm Central Time but if it's urgent, call us anytime.
email:
The Scoggin family’s MTMRG email address is info@mtmrg.org.
(For quicker response please use the
Foye email.)
telephone: The Scoggin family’s phone number is 409/945-8569.
mail:
The Scoggin family’s MTMRG mailing address is:
Myotubular Myopathy Resource Group
2602 Quaker Drive
Texas City, TX 77590
Meanwhile, starting in October 2006, the
Foye email is a regularly monitored e-mail for people with suggestions for
this website or those interested in current and ongoing educational,
networking, support, or research projects related to myotubular/ centronuclear
myopathy. We love to hear from you! Call us at 973-882-1996. Or, better yet,
why not send
us a quick e-mail now? Just send it to: myopathy@optonline.net
.
Sorry, but it seems that the site survey is working right now…. In the
meantime, please just email
us at: myopathy@optonline.net.