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Families This section of our website is for affected families to tell about their experiences. Following are stories and ancedotes written by some of the families affected by myotubular myopathy. Below are some websites of affected families.
Guidelines for Submission If you'd like your story or website included here, please let us know. We want to include as many different families as we can. Since we want to show the scope of the disorder, we want to publish good outcomes, bad outcomes and somewhere-in-the-middle outcomes. Simply stated: nobody's experience is inappropriate for this site. Stories and photos can be submitted either electronically or in writing. Stories submitted in electronic format should be in Word, WordPerfect, .txt or .html format. Pictures should be in either .gif or .jpg format. We may have to do some minor re-formatting or editing to make your submission fit. Also, bear in mind that submissions published here are available for all the world to see. So, please use your own good judgment as to what level of personal details you wish to provide. Also, please read our Privacy Policy before submitting your story.
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