and other information on Myotubular
and other forms of Centronuclear Myopathy (CNM)
A regularly-updated website with educational information regarding myotubular myopathy (MTM) and centronuclear myopathy (CNM) can be found at Wikipedia (which is a free, online encyclopedia) at the following link: http://en.wikipedia.org/wiki/Centronuclear_myopathy_(including_myotubular_myopathy)
If you would like to be placed on a mailing list to receive some of the newer newsletters (2006, 2007 and beyond) then just click on this link to send an e-mail to us. If your family is affected by MTM/CNM, then most likely you want to stay up-to-date on the latest developments. We will be happy to keep you informed of research advancements, family support groups online, free educational conferences for MTM/CNM families, and many other updates as they occur. To get yourself included on the mailing list, why not send us a quick e-mail now? Just send it to: firstname.lastname@example.org . We look forward to hearing from you.
Meanwhile, below are some of the older newsletters (from the 1990s) by the MTMRG. To protect the privacy of our families we will be deleting names and other identifying information.
This web page was last updated: November 26, 2006.