Newsletters
and other information on Myotubular
Myopathy (MTM)
and other forms of
Centronuclear Myopathy (CNM)
Click here to go back to the MTM Resource Group home page.
A regularly-updated website with educational
information regarding myotubular myopathy (MTM) and centronuclear myopathy
(CNM) can be found at Wikipedia (which is
a free, online encyclopedia) at the following link: http://en.wikipedia.org/wiki/Centronuclear_myopathy_(including_myotubular_myopathy)
If you would like to be placed on a mailing
list to receive some of the newer newsletters (2006, 2007 and beyond) then just
click
on this link to send an e-mail to us.
If your family is affected by MTM/CNM, then most likely you want to stay
up-to-date on the latest developments. We will be happy to keep you informed of
research advancements, family support groups online,
free educational conferences for MTM/CNM families, and many other updates as they
occur. To get yourself included on the mailing list, why
not send
us a quick e-mail now? Just send it to: myopathy@optonline.net
. We look forward to hearing from you.
Meanwhile, below are some of the older
newsletters (from the 1990s) by the MTMRG. To protect the privacy of our
families we will be deleting names and other identifying information.
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This web page was last updated: November 26, 2006.