About the Myotubular Myopathy Resource Group
The Myotubular Myopathy Resource Group, Inc, is a not-for-profit organization formed for the following purposes:
Support for this home page and for much of the work we do is made possible through a generous contributions from the BP Global Social Investment, part of BP. In early 2001, we received our third grant from them as part of their AVP program. Thanks!
Copyright © 2000 by the Myotubular Myopathy Resource Group, Inc . Information on this website may be redistributed and copied freely provided that proper attribution is given. This page was last revised on 10 Mar 2001. The Myotubular Myopathy Resource Group, Inc. is a not-for-profit organization under Section 503(c) of the IRS Code.These World Wide Web pages are published by the Myotubular Myopathy Resource Group, Inc. solely as a service for interested parties. This is a lay interpretation and should not be considered definitive by any means. This discussion draws largely from the sources cited as well as the personal observations of the authors. We are neither doctors nor experts nor do we pretend to be. Any decisions on medical treatments, interventions, courses of action, etc. should be made by the appropriate family members in consultation with the available literature and qualified medical professionals. Good sense should always prevail. The authors, contributors and the Myotubular Myopathy Resource Group, Inc. assumes no responsibility for the use of the information, observations or opinions presented herein.
Click here for the care guide for families.